Since December 2016, I have been battling right ear and jaw degeneration. My hearing has decreased slowly but surely over the last 8 months. The unwelcome addition of tinnitus began in May 2017. I saw over seven Ear, Nose, and Throat doctors, and a multitude of other specialists since the onset of this latest debacle,… Continue reading Help Me Thank A Great Doctor
I gave this presentation at the Children’s Craniofacial Association Annual Retreat in Boston, MA in 2010. I think the information could be helpful to teens, social workers, teachers, and others that interact with teens and young adults born with a facial difference.
The mother’s always come forward first. They are filled with apologies and explanations. “She’s shy.” “He isn’t feeling great today.” “She doesn’t love physical activities.” “This is new.” “He’ll come around once he sees everyone having a good time. This is how it always begins, but by the end of a social event for… Continue reading Transforming Fear Into Fun
I was in the waiting room at the dentist office in a ton of pain, so I thought how can I improve the moment and practice some distress tolerance. I looked over at People Magazine on my right. The front cover depicted a photograph of Natalie Wood. Then I thought, “let’s make a list of… Continue reading My Must Watch Movie List
September is Craniofacial awareness month. A month, and cause, near and dear to my heart. I was born with bilateral cleft lip and palate. I have written a lot about my cleft lip and palate experiences on this blog. The teasing and questions, the procedures, surgeries, scary moments, and, believe it or not, there is… Continue reading Resilience Through Humor
Craniofacial Awareness Month is almost over. I told myself that I would write more posts this month that relate to the experiences I had growing up with cleft lip and palate, so I could build on the amount of content I had before approaching a publisher about the book about my life. I guess you… Continue reading Remember That Time I Almost Died!
Service work is so important to me. I was born with cleft lip and palate that required many surgeries, countless procedures, loads of appointments, and don’t forget the orthodontic interventions as well. I had braces twice, one set for 12 years. I do not know how many surgeries I have had. I am never sure… Continue reading Service and Perspective, the Orlando, FL Edition