Welp, a lot went right and a some went wrong today. Dickens wrote, “It was the best of times, it was the worst of times.” Peanut butter and pretzels it is tonight while I write.
Today I confirmed that my hearing loss has progressed in both ears. My tinnitus has increased on the right side and seems more prominent because of said hearing loss. I will need to get a new hearing aid(s). I qualify for whatever the next level up is. I made an appointment for the middle of March.
I need to see a neurologist at some point to rule out some weird symptoms I am having with my soft and hard palate spasming uncontrollably all day and night. I keep reading that it could be the beginnings of some scary, degenerative disorders. I think it is more likely that it is related to the jaw stuff. Today’s doctor believes that too.
I learned that the right ear drum is ruptured/perforated again. So waste of money, pain, and time back in December 2017.
Additionally, I received confirmation that “hey maybe your ear symptoms are caused by your jaw” with the promise that said medical provider would talk to his “good neighborhood friend” the Dean of Harvard Dental School because “you are just too complicated” and “let’s not get more cooks in the kitchen.” Ok…so this doctor will email me through the patient portal regarding his chat with this Harvard man. Hopefully, I will hear from him soon. I currently have a date for surgery….May 20, 2020…over a year away. There must be a better solution.
The medical winds blew in my favor with the team of professionals I saw today. The otologist that has been around for over 30 years, knows people, and knows what he is doing. The audiologist I had for the hearing test was the woman who helped me get the hearing aid device I currently have. She did a full and thorough hearing test, harkening back to the days of my youth when I was in the soundproof room for close to 45 minutes to an hour. She cleaned my hearing aid, helped do a quick training on it, so i can optimize my use of it. No coincidence that “double purple” blinking lights is my go-to setting now (Go Crusaders! Go Holy Cross!) And finally the receptionist in the hearing aid department that allowed me to come into the office at 4:40PM, see a specialist, and make an appointment for the consult for a new device.
Ultimately, the greatest thanks go to my parents for living and BEING from Boston, Massachusetts. I cannot live anywhere else. I wouldn’t want to live anywhere else. This is home. I walked through this 2.5 hours of appointments and tests very scared, but confident that I was in the best of hands. I am also very grateful to have experienced a wonderful yoga class that I knew I needed, taught by one of my favorite teachers and friends. Thank you, Kris Cox, it is an honor to have you in my life for days like this one.
For now, my parents and I must restrategize our communication with the jaw surgeon again. Emboldened by these new findings we need to get an earlier date than the existing May 20, 2020. I cannot wait that long.
All will be discussed this weekend.
For now, perhaps some more peanut butter, pretzels, and super dark chocolate. #SorryNotPaleoTonight