Disability · emotions · facial difference · Family · Medical/Dental · Mental Health · thoughts · Work and Job · Writing

Disability and Advocacy

Yesterday, Monday, March 8th, I spoke on a panel about disability and advocacy work. The working copy of my remarks appears below. I plan on editing for spelling errors, grammar, typos, and flow tonight or tomorrow. In the meanwhile, enjoy the spirit of my words. Here I am surrounded by doctors yet again.  I was… Continue reading Disability and Advocacy

baseball · Cleft Lip and Palate · Dad · facial difference · Red Sox · Sports

Adventures in Baseball Research: Jim Bagby Jr.

I researched and wrote a piece on former baseball player, Jim Bagby Jr. for Children’s Craniofacial Association. Hope this brings some Major League Baseball back for you, if for just one moment. If you have talked to me in the last few months, I have most likely annoyed you with this man’s pitching statistics, teams… Continue reading Adventures in Baseball Research: Jim Bagby Jr.

art · Creativity · Museums

Walking Into The Dark: Ragnar Kjartansson’s, “The Visitors”

Nothing moves me. Sometimes I wonder if I’m dead inside. Kidding, I couldn’t be more opposite. Everything moves me, I’m totally at the whim of my emotions. However, what typically really does not work for me are video art installations. Love art. Love museums, but the video things baffle me. I walk in and it… Continue reading Walking Into The Dark: Ragnar Kjartansson’s, “The Visitors”

acceptance · behavior · Concerts · emotions · gratitude · Mental Health · recovery · Self · thoughts

    Cages or wings, Which do you prefer? Ask the birds Fear or love, baby Don’t say the answer Actions speak louder than words “Louder Than Words,” Tick Tick Boom, Jonathan Larson During these days of self reflection, I always go back to my roots…musical theater. Betcha didn’t see that coming. Our family always… Continue reading

acceptance · Cleft Lip and Palate · News · Writing

I’ve Gone International!

  Recently, I wrote a wrap-up article about CCA Kids media activities during Cleft and Craniofacial Awareness month. The folks at Face Equality International posted my words on their blog. It came out well. Check out what we did to raise awareness during July. A look back on Craniofacial Awareness Month And don’t forget, every… Continue reading I’ve Gone International!

baseball · Red Sox

2019 State of the Sox at the Trade Deadline

  I couldn’t resist. It’s the most wonderful time of the year. The July 31st trade deadline is better than Christmas for me. Sitting at my desk with my laptop open so I can watch twitter, while refreshing Ken Rosenthal’s twitter feed is where you will find me all day on Wednesday. Heck, maybe even… Continue reading 2019 State of the Sox at the Trade Deadline