Since December 2016, I have been battling right ear and jaw degeneration. My hearing has decreased slowly but surely over the last 8 months. The unwelcome addition of tinnitus began in May 2017. I saw over seven Ear, Nose, and Throat doctors, and a multitude of other specialists since the onset of this latest debacle,… Continue reading Help Me Thank A Great Doctor
Things have been busy these days. Time for fun blogging is few and far between. I’m also trying to revamp the site, add a few more bells and whistles, menus, a newsletter, so this site is a bit “under construction.” (Thank you for your patience.) Right now I am contributing some fiction, poetry, and… Continue reading Everything That Rose, Finally Converged
I gave this presentation at the Children’s Craniofacial Association Annual Retreat in Boston, MA in 2010. I think the information could be helpful to teens, social workers, teachers, and others that interact with teens and young adults born with a facial difference.
Check out a piece I wrote about my adventures in dentistry on The Mighty! I am so very excited to contribute to this wonderful website that shares first-hand accounts of what it is to live with rare diseases, chronic illness, mental illness, and crazy things that happen to us as human beings! Thank you to… Continue reading I Am One of The Mighty
Hello…Yes..I am putting the FUN in fundraising. Fun follows me wherever I go. On Sunday I am taking a cycling class to benefit research and awareness on Ovarian Cancer I’m fundraising to support the Ovarian Cancer Research Fund Alliance (OCRFA). Will you please support me and my efforts with a donation? Please give what you can.… Continue reading “Fun”draising for Ovarian Cancer Research
I’m starved for spirituality and yet everywhere I look there is nothing to nourish me…or so I thought. You need hope. You need to believe in some thing, but it is so hard to do that when your body is failing you and no one knows why. It is hard to keep some skin in… Continue reading 🎼 Ch-Ch-Changes: Spirituality Reboot
Mom, you are probably not going to love this one. The only way I know how to process my thoughts and emotions is through writing them down. It is the only way I know how to place my burden down and triumphantly walk away. I’m Tired… I’m tired of fighting I’m tired of putting on… Continue reading I’m Tired
